HashtagsCompiled on | #RareDiseaseDay, #RareDisease, #RareDiseaseDay2025 |
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Related Hashtags | #RareDiseases |
2025 Date | February 28, 2025 |
2026 Date | February 28, 2026 |
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Top X Posts (formerly Tweets) for Rare Disease Day -Updated
Rare Disease Day HistoryRare Disease Day raises awareness about rare diseases, their impact on patients' lives, and the importance of research and collaboration in developing treatments, providing support, and advocating for resources. The purpose of this annual event is to create solidarity and understanding among the general public, healthcare professionals, policymakers, researchers, and industry leaders about the unique challenges faced by those living with rare diseases -- which often include mortality, disability, lack of adequate treatments, social stigma, and economic burden. It is also a time to celebrate successes and highlight the ongoing efforts to improve the lives of millions of people affected by these conditions. Rare Disease Day was established in 2008 by the European Organization for Rare Diseases (EURORDIS), along with the collaboration of other global organizations and stakeholders. The global response to this initiative from patient organizations, healthcare departments, and research institutions has been exceptional, turning it into an international occasion celebrated in over 100 countries. Since its inception, Rare Disease Day has inspired the formation of national alliances, policy improvements, research funding, and networking opportunities that advance the rare disease community and bridge gaps in knowledge and resources. Rare Disease Day occurs on the last day of February each year, chosen for its rarity as it falls on the 29th during leap years and the 28th in other years. Top facts about Rare Disease Day
In the News and Trending in the US for Rare Disease DayUpdated I Asked My Sister To Try To Die On Rare Disease Dayhuffpost.com Rare Disease Day at NIH 2024nih.gov Communicating About Rare Diseasesnih.gov Gene Therapies Could Transform Rare Diseases. Are We Holding Them Back?nytimes.com Top things to do for Rare Disease Day in the US
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